Cancer changes everything

Hey! I’m Brenda. A badass bitch with a zest for life and adventures. This blog is to help those that are interested in getting updates on what the heck’s going on with me and my diagnosis– I can hardly keep up myself. It’s also a place to just share the myriad emotions that I’ve been experiencing. So, here goes.

Below is the back story (for those you new to this whole cancer bullshite, much like myself). My visit to the Urgent Care and Emergency Room was January 19, 2017: the day my life changed forever.

I’d been feeling tired & having problems breathing since mid-November/early December. Of course, me being me, I continued to work and go about my life until I could barely walk without gasping for air.  I went to Urgent care for an inhaler to help my breathing. An x-ray revealed a considerable amount of fluid next to my left lung, which had pushed against the lung causing it to collapse. So, that would account for the breathing problem!

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Moment of Truth

I was instructed to go  STRAIGHT to the Emergency Room so the fluid could be drained. I happen to be friends with the doctor at the urgent care. She said if it was anyone else they would call for an ambulance. I assured her that was NOT necessary, as I didn’t have insurance and could never afford that. Again, I was told to go to the emergency room IMMEDIATELY. Damn! Sounds serious. I drove home, made a snack (I was peckish!), grabbed a book to read, my phone charger — the essentials — and drove myself to the  Emergency Room. After a few hours wait, they drained the fluid (1.6L) and had it tested. I was told it tested positive for cancer and to go home until a follow-up meeting with an oncologist the following week. WTF? I was of course in shock and disbelief. This couldn’t possibly be correct. I drove home to share this information with my family and best friend.

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From Alaska to Houston

I was diagnosed with Stage 4 lung cancer. We didn’t have many details. Treatment options were still vague and unclear. After some conversations with the oncologist I decided to travel to MD Anderson in Houston, Texas for a second opinion, but more importantly to talk to a lung cancer specialist because we don’t have any in Alaska. I must admit, so much happened so quickly (and I’m thankful for that) I really wasn’t able to process everything, as well as plan the flights to Houston, figure out housing, insurance, and all the details necessary to get to myself and my parents to Houston.

I was out in the valley visiting my parents when my phone rang at 6:30 AM on February 10. Anyone who knows me, knows better than to call me before 9AM.  I’m not what you would call a morning person. I saw an out-of-state number and realized it was a Houston number. I had called MD Anderson the previous day to make sure they had received the referral from my Alaskan Dr. — they hadn’t, but a nurse at MD Anderson quickly schooled the Alaskan team and was getting things processed and moving forward in Houston. I was told that there had been a cancellation and a doctor could see me @ 7AM in Houston on February 16. Did I want to set up this appointment? In my half awake state, I paused in confusion. He mentioned that the next available appointment wouldn’t be until March. I immediately said that yes, I would take the appointment for February 16th: the following Thursday. From that point on I was completely overwhelmed. How was I going to get to Houston in less than a week? Would my parents be able to come down with me? Where would I stay? What new information would I get from the lung specialist?

I made numerous phone calls, talked to my parents, tried to formulate a plan on the best way to get to Houston, and then drove back to Anchorage, straight to the hospital, to have more fluid drained. A procedure that I now needed about once a week from the initial emergency room visit onward, to relieve pain and my breathing. After waiting for well over an hour to have the fluid drained I went home and collapsed into bed. Exhausted, overwhelmed, I wanted nothing more than to just sleep and pretend that this wasn’t what my life had become.

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Emotional Rescue

Lucky for me, my friends stepped in and reminded me that this was all too much to handle by myself. They helped me to remember that I have friends and family that love me and want to help and support me. By the next day, a GoFundMe account had been set up and people immediately began donating money to help pay for my medical and travel expenses. It was a miracle! Suddenly a huge weight had been lifted off my shoulders. A friend of mine not only offered to give me air miles, but booked tickets for me, my mom and my dad from Anchorage to Houston, leaving on February 14. We would be able to make that Dr’s appointment on February 16!

I have a cousin in Houston and he offered to let my parents and me stay at his place. I’m literally surrounded by family, plus a network of friends who live here in Texas. We have been here for about a week now, and my verbal lexicon has expanded to include quite a lot of “medicalese.” Basically, I have a type of lung cancer that is pretty rare, but is more often seen in non-smokers than smokers. My doc, Dr. Blumenschein, has prescribed a “cocktail” of pills to keep it at bay — and it is not the kind of cocktail you usually see me enjoying at my favorite Anchorage hot spots. At $8,000 for a month’s supply, this will surpass any drinking tab I’ve ever incurred.  Also, it doesn’t go down well with IPA, so I will be cutting way back on the drinks for awhile. But it is worth it, because Dr. B is optimistic about the chances of these drugs keeping a leash on cancer, hopefully for several months to a year, or more if I’m lucky before we’re forced to move on to the next treatment.

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Back to the AK

I’m hoping to be home in time for the Michael Franti show on March 2nd. So if you’d like to hang out and buy me a non-alcoholic drink and do some dancing, that would be a great place for us to reconnect. Yep, that’s right: Momma’s still dancing her ass off. This has been a shitty month, let’s not lie, but I’m not gonna let cancer keep me from doing the shit I love to do. So get ready, Anchorage. Hurricane Brenda’s touching down in the near future!

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22 thoughts on “Cancer changes everything

  1. You are an amazing woman with an incredible spirit. Not only are you blessed with love you are blessed with hope. And Love is hope. You’ve got this!!

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  2. You are my hero, Bren! I have always admired your zest for life when we were kids, and have continued to do so through our adulthood-ish. You are one of the strongest people I know. Keep your head held high, God’s got you! I am blessed to call you my friend! Thank you for always having a smile, no matter what. It truly is inspiring! I love you!!! ~Rick

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  3. Sorry to hear the news. Contact the American cancer society. Hotels donate rooms to them for patients. Non profit groups for your type of cancer have resources to help as well. Gas cards, etc. For travel.

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  4. Stay strong and confident as you are now! You can beat this! I was diagnosed with Cancer last year, no matter what kind just hearing cancer is life changing! Hoping for the best for you friend! Take care! ❤

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  5. B this sounds hopeful. Do you have return tickets? I have some air miles I can probably get at least one of you back if you want me to book? Let me know. I will repost the go fund me to keep that support coming for those good drugs 🙂 love you sister!!!!❤️💕❤️💕❤️💕

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  6. Thank you for the update B. I’m wondering how I can support you. You in Melanie and i’s thoughts! I know my parents dontaed some money and I will try to soon.
    Love ya girl even though we are far away!
    Petey

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  7. My new cocktails ran about 10 grand for the MS therapy (maybe we should’ve started a drug company). I’m glad for all of the support. There is nothing worse than fighting for your life and having extra bullshit stress like worrying about money to make things worse. This blog is great – keep it updated if you’ve got the energy. If not, sleep… it’s not overrated.

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  8. Dame… so glad I meet you if only I had more ppl like you around I would have more real friends . I feel blessed to have meet you at Andys jewellers in Roseau. You are a power house and have always had my back when in Dominica . I will do what ever I can to help you, if i can give I will please know I am your friend as you are mine. Peace and love I’m sending your way my friend

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  9. Thanks for the update on YOU!!! I have been thinking about you so much. Please let me know if you miss anything from the AK that I can send down. Or anyth My. ANYTHING!!!!! Xoxoxo

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  10. Thank you for this update; I am SO happy to here of the optimistic news and the ability you had to reach the right specialist. Also please bring Hurricane Brenda to Oakland. Miss you so much!!

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  11. You BRAVE and AMAZING woman! I admire your strength and positive attitude tremendously. I look forward to reading your updates. Much love and Aloha, sistah! XO

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  12. Brenda, you are amazing! Thank you so much for writing this blog so I can keep up with your news. I’ll be praying for you, your family and your doctors.
    A flash from our days at Russian Jack. ..
    I remember you telling me about your cross continental trip by bus! You are the first person I knew to do something like that! Courageous then and courageous now! Love you!

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  13. Holy smokes Hurricane Brenda! To be experiencing what you’re experiencing and yet still be blogging with top form style, grammar, and puncutation… I would love to buy you a non-alcoholic drink once you’re back in town!

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  14. Comment: My dear free spirit…I continue to send prayer’s winging your way…in a selfish attempt to convince the Almighty to allow us the continued privilege of knowing and loving you. ❤ ❤ ❤
    I cannot help but think of you often, as you wander…..ever the traveler…….through my mind

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